Thanks to the rise of social media, we’re all bombarded with images of seemingly perfect-looking people; it seems as though the world has become even more shallow in how people are judged.
For those of us that don’t fit the stereotypical “perfect” mold, the world can seem very cruel, with complete strangers feeling it necessary to criticize someone based on their appearance on social media.
Karine de Souza knows this more than anyone. The Brazilian has spent her life covering her skin in SPF100 sunscreens – even when she’s inside her home – due to her rare skin condition.
Diagnosed with Xeroderma Pigmentosum at the tender age of three, Karine, now 33, lives with the constant threat of skin cancer due to her "one-in-a-million" condition. Her body's inability to repair sun-induced damage leaves her highly vulnerable to UV rays. A mere few minutes in sunlight can trigger excruciating sunburn. Growing up, her outdoor activities were severely restricted to protect her delicate skin.
Karine explains, "The sun's effects don't manifest immediately. I don't feel anything in the moment. It's the lesions that appear later and need to be removed due to the risk of cancer."
“When I expose myself to the sun it doesn’t happen in the moment, I don’t feel anything. However, in the future, the lesions appear and need to be removed because of cancer,” she says.
The toll of her condition extends beyond the physical. Karine's distinctive appearance often draws stares and cruel comments, both in her local community and online.
Despite these challenges, her spirit remains unbreakable. Love, remarkably, found its way into her life.
Through social media, she connected with Edmilson, a man who was captivated by her resilience and story. Their bond grew stronger, and he embraced not only Karine but also her three children from a previous relationship.
Their love story, however, invited a fresh wave of hurtful remarks when shared online. Offensive comments labeled Karine as a "monster" or "deformed," attacking their relationship's authenticity and implying she must be wealthy to be with Edmilson. But these judgments couldn't tarnish their connection.
The photographer's moving words, coupled with the beautiful images of Karine and Edmilson, went viral, garnering widespread admiration.
Karine hopes her journey underscores the importance of maintaining positivity. "Choose happiness, smile, for life is a fleeting gift," she urges.
His heartfelt words and beautiful images he captured of Karine and Edmilson went viral, and thousands of people commented, congratulating the couple.
Karine wants others to realize the importance of being positive.
”Be happy, smile, because life happens only once,” she said.
In 2023, Karine and Edmilson welcomed their long-awaited bundle of joy, a baby girl named Zaia. Their journey, marked by resilience and optimism, is a beacon of inspiration. Let us share their story to uplift others facing similar challenges, reminding them that even in the face of adversity, happiness can bloom.
Karine has been through so much but thanks to her positive attitude she has found the happiness she deserves.
Her story is inspirational so help us inspire others in similar situations by sharing this story with your friends and family.
DISCLAIMER: THIS WEBSITE DOES NOT PROVIDE MEDICAL ADVICE The information, including but not limited to, text, graphics, images and other material contained on this website are for informational purposes only. The purpose of this website is to promote broad consumer understanding and knowledge of various health topics. It is not intended to be a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of your physician or other qualified health care provider with any questions you may have regarding a medical condition or treatment and before undertaking a new health care regimen, and never disregard professional medical advice or delay in seeking it because of something you have read on this website.